Joey's mom arrived on Sunday afternoon for a week long visit with the boys. The first night, she said she dreamed she was trying to protect them and 2 of Joey's cousins she used to babysit dry and safe and was having trouble doing so - as a result of hearing them cry at night. This morning she said she never heard them cry so I guess she's already used to it :)
Isaac had his evaluation yesterday with the Clayton County Board of Health for their Babies Can't Wait Program. There was an educator and a physical therapist as well as another therapist there that asked me a lot of questions about his habits and needs, his breathing issues, watched me feed him and interacted with him a little as part of the evaluation. They said he is borderline qualified because of a few difficulties but want to meet Eden to see if he mirror's Isaac's setbacks so the educator will come by on Monday to evaluate him.
After I got him home, Joey took his mom to Ikea for a bit. Isaac's nasal cannual for his oxygen kept coming untaped during the evaluation (mostly because he kept pulling it off) so I took it off him to clean it but noticed his stats were doing really well while I had it off so I decided to see just how long he could go. I was a bit nervous at first but 15 minutes turned into 30, and then an hour and then a total of five hours, at which pont I had given him a bath and dressd him for bed and wanted him to be back on it for bedtime. He was almost a different baby, wide eyed and cooing most of the time and slept very hard while he napped. Hopefully this will continue and we may have him off it sooner than we thought (Christmas). He has a follow up appointment with his pulmonologist on the first week of November so she'll probably schedule the sleep study shortly after where he and I will spend the night at Egleston to see how he does without oxygen.
I also had to "fire" their pediatrician due to a severe error on her part for calculating their Reglan prescription. It started with filling the prescription she gave us on their visit on the 1st at the pharmacy When the boys were discharged from the hospital, it was 0.2ML for Eden and 0.21 ML for Isaac 3x's a day and the both weighed just over 5 lbs. They weighed 10+lbs and 9+lbs respectively at the 2 month appointment but she increased the dose to 3ML each - still 3x's a day. The pharmacy thought it was a lot so they called to confirm it's accuracy and she did. That night after we gave them both their first dose, Eden had a problem swallowing it and it accidentally got in his airway, he threw up everything he just ate and was wheezing. I called the on-call doctor to make sure him coughing it out would be okay or if we needed to take him to emergency. He said he should be okay but asked how much we gave him and when I told him 3ML, he was shocked and said it should be no more than 1ML and we needed to call in the morning to confirm the prescription. I was able to speak to another pediatrician who recalculated it at 0.4ML for each of them so we gave them 7.5x's as much as they should have gotten. My gut reaction was to physically harm the pediatrician that prescribed it whom I never really got warm fuzzies from anyways. I had them change them over to the new pediatrician and flag our account that she is the only one we see from now on as well as the same at the pharmacy. Now I get to do the same for all the specialists Isaac's already seen. *sigh* On a good note though, the clinic that administers Isaac's RSV shots finally got the referral for Eden and are only waiting now on insurance approval, so hopefully that will happen soon. We need to get flu shots for Joey and I still too, but we're stalling because we both hate them and only get sick when we get them...
Today we took them both in for Isaac's appointment with the Gastrointestinal specialist. She was very thorough and asked a lot of questions about both of them and decided to "experiment" with a few things to see if 1) Eden's fussiness and Issac's newly developed fussiness subsides with the removal of their Reglan, 2) Increase the dose of Zantac they were taking to see if it takes care of the reflux issue, and 3) add oatmeat to their formula to help with spitups since the added rice in other formulas made them constipated. I'm still worried it will constipate them because the Zantac does that on it's own, but maybe the oatmeal is the key.
Next Thursday is Isaac's second followup with the eye doctor but instead of just seeing the same person for five minutes after waiting for 2 hours, the therapists at the evaluation let me know they just hired an actual pediatric ophthalmologist, so I changed the appointment to her. He has to go back again because he's still on oxygen and it has increase the blood vessel growth in his eyes, causing problems later.
Oh, and the intention of a new, more enclosed entertainment center for our tv turned into a new 46" LCD flat panel tv as well and we used the $ Joey got from selling his Vespa for it - and it's our Christmas present to each other, so yeah. We're enjoying it :)
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2009
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October
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- Happy Halloween!
- First non-doctor related outing
- Happy 3 month birthday little monkies!
- Kristy's visit
- I have the most awesome husband in the world!
- Eden snoozing & Isaac helping me hold his bottle.
- Random pictures of the boys
- Grandpa's Boys :)
- Joey's mom arrived on Sunday afternoon for a week ...
- Isaac got his first RSV shot today and hasn't been...
- Isaac went to the Urologist yesterday and they wer...
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About Me
- Trish Rhodes
- I am a mother to three amazing boys including a set of fraternal twins, a wanna-be artist that lives on a 21+ acre farm in Virginia with my wonderful (musician) husband and have an associates degree in art with a focus in painting.
My Blog List
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The Running Man14 years ago
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Batman: Arkham Asylum14 years ago
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Day 216: Kamen Rider (Masked Rider)12 years ago
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